To Carers of Persons Living with Dementia

Dementia is treated with care

The carer is often a person who has known, loved and grown with the person diagnosed with dementia. While co-dependence is a part of any relationship, here, as the disease progresses, the dependence can get overwhelming. This blog is for you, the carer- to remind you that it’s okay to need and seek help.

To ensure that care is sustainable for you and your loved one, you can:

  1. Learn about the disease and visit a doctor at the earliest to ensure correct diagnosis. Early diagnosis can enable them to take  important decisions for the future. As dementia tends to deteriorate over time, it is important to plan ahead. You can consult your doctor and involve your loved one in decision making.
  2. Involve them in chores and activities as far as possible.
  3. Communicate patiently without using extra/complicated words. Example: Refer to nouns by their actual name. For example, during a walk when pointing out a pretty bird, say “bird” instead of “it”.
  4. Share your duties with family and friends. Seek professional help(nurses, daycare, etc.) if needed.
  5. Take breaks whenever possible so that you can relax physically and mentally.  (See iSupport manual below for relaxation exercises)
  6. Talk to friends, family and your doctor. Seek and provide support. Look for support groups for learning and support.

Here are a few resources more resources to aid in your journey as a carer

  1. WHO iSupport is an online training programme to support caregivers of people living with dementia.
    You can also
    download the offline manual.
  2. ARDSI: Alzheimer’s and Related Disorders Society of India (ARDSI) is a national, voluntary organization engaged in the care, support, training and research of dementia.
  3. Dementia Care Notes(A City Wise List of Centres All Over India for Dementia Care)
  4. Compilation of learning resources on Dementia in Indian languages

Blogger Name : Shivangi Shankar

Blogger Info;

Shivangi Shankar, a final year MBBS student at MMCRI, Mysuru, is fond of writing and sees it as a means of catharsis as well as communication. She hopes to make ideas of physical and mental wellbeing accessible to, and inclusive of, all.

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